A huge donation is received, fundraising ideas for anyone, research articles summarized, grant is funded, family meeting registration is open, fundraisers were successful, and a few tax return ideas for our community are all covered in our latest edition of the AHCF newsletter.
Read. Share. Enjoy.
SOUTHFIELD, Mich., March 2, 2016 /PRNewswire-USNewswire/ — On Rare Disease Day, February 29, 2016, the Alternating Hemiplegia of Childhood Foundation (AHCF) received a donation from the Jake and Nina Kamin Foundation in the amount of $125,000. “I am glad to help in this endeavor and I am very optimistic that the research will find better drugs that will help the AHC kids,” said Susan Smith, president of The Jake and Nina Kamin Foundation.
The AHCF hopes to raise $550,000 to fund the next round of research projects and this amazing donation will get the foundation closer to that goal.
Tobe Cohen, father of AHC Hero Asher commented, “It is so rewarding to see the caring and generosity that I saw in my Uncle and Aunt in their lifetime, continue on through the Jake and Nina Kamin Foundation. The foundation’s gift will enable critical research to continue in the search for a treatment and cure for Asher and all the kids who battle AHC every day.”
For more information or to donate, visit ahckids.org. AHCF can also be found on Facebook and Twitter.
You can find the complete Issue HERE
My name is Jeff Wuchich, and I am grateful to serve as the newly elected moderator of the AHC International Alliance. I am the Co-Founder and President of Cure AHC (www.cureahc.org) and also dad to AHC Champion Matthew (NC, USA)- his story http://bit.ly/MWUCHICH . Thank you to my fellow Association leaders and Country representatives for selecting me.
In the coming months we’ll work hard together as an alliance to share the latest and greatest AHC research, fundraising, and community news. Stay tuned!
Snezana Zunic, mother of Lena, lives in Novi Sad city is the representative for AHC International Alliance in Serbia
Her email address is:
First edition of The Soaring Times is out.
READ AND SHARE
The latest edition of AHCF newsletter is out
Click HERE to read it.
Today the AHC International Media released 3 interviews taken at the ATP1A3 symposium in Washington, DC last August.
Also a new Facebook page was created and a Facebook group for discussions
Please help us to share the news and puch forward towards cure for AHC
Please take some time to explore what the AHC community on Rare connect has to offer
Interesting hypothesis from Sigurdur Johannesson from Iceland.
To read the article click HERE