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AHCF Receives $125,000 Donation

AHCF Kids WorldwideSOUTHFIELD, Mich., March 2, 2016 /PRNewswire-USNewswire/ — On Rare Disease Day, February 29, 2016, the Alternating Hemiplegia of Childhood Foundation (AHCF) received a donation from the Jake and Nina Kamin Foundation in the amount of $125,000.  “I am glad to help in this endeavor and I am very optimistic that the research will find better drugs that will help the AHC kids,” said Susan Smith, president of The Jake and Nina Kamin Foundation.

The AHCF hopes to raise $550,000 to fund the next round of research projects and this amazing donation will get the foundation closer to that goal.

Tobe Cohen, father of AHC Hero Asher commented, “It is so rewarding to see the caring and generosity that I saw in my Uncle and Aunt in their lifetime, continue on through the Jake and Nina Kamin Foundation. The foundation’s gift will enable critical research to continue in the search for a treatment and cure for Asher and all the kids who battle AHC every day.”

For more information or to donate, visit ahckids.org. AHCF can also be found on Facebook and Twitter.

Jeff Wuchich Elected New Moderator of AHCIA

STV2I3A-PicGreetings,

My name is Jeff Wuchich, and I am grateful to serve as the newly elected moderator of the AHC International Alliance. I am the Co-Founder and President of Cure AHC (www.cureahc.org) and also dad to AHC Champion Matthew (NC, USA)- his story http://bit.ly/MWUCHICH .  Thank you to my fellow Association leaders and Country representatives for selecting me.

In the coming months we’ll work hard together as an alliance to share the latest and greatest AHC research, fundraising, and community news. Stay tuned!

 

HELP US FIND THE LOST AHC CHILDREN

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The AHC International Alliance is working on a documentary about Alternating Hemiplegia of Childhood.

The documentary will review the history of AHC from 1971 when it was first characterized.

There will be interviews with families and professionals that are on the forefront of the disease.

The documentary will be translated in at least 8 languages.

The purpose of the documentary is to find the undiagnosed AHC champions, raise awareness and to expedite research on AHC.

Please go to INDIEGOGO to support the project

Thank you so much