The AHC International Alliance is working on a documentary about Alternating Hemiplegia of Childhood.
The documentary will review the history of AHC from 1971 when it was first characterized.
There will be interviews with families and professionals that are on the forefront of the disease.
The documentary will be translated in at least 8 languages.
The purpose of the documentary is to find the undiagnosed AHC champions, raise awareness and to expedite research on AHC.
Please go to INDIEGOGO to support the project
Thank you so much
From AHCIA Moderator Lynn Egan: The Rome Symposium was very exciting.There were over 60 scientists and physicians and 20 parent representatives in attendance. The presentations were interesting if sometimes over our heads. Continue reading
2nd symposium on ATP1A3 in disease: genotype/phenotype correlations, modeling and identification of
potential targets for treatment
Catholic University of Rome – School of Medicine
Rome 23- 24 September 2013
Program and Brochure http://www.symposium-atp1a3.tk/
Contact Maria Rosaria Vavassori, for more information.
A.I.S.EA onlus firstname.lastname@example.org
Family Meeting 01.05. – 04.05.2014
AHCF Family Meeting June 26 – 28 Minneapolis, MN (All families from around the world are invited)
10th May 2014 at The National Centre for Epilepsy, Chalfont St Peter, Buckinghamshire, 10:00 AM onwards. Professors Sisodiya, Neville and Cross will be giving presentations.
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AHC SYMPOSIUM UPDATE
Last December, there was a medical symposium held on AHC in Brussels, Belgium. The following summary about the symposium was shared with us by Dominique Poncelin, president of the AHC family foundation in France. Continue reading
On January 18, 2012 scientists discovered that there was a mutation in the gene ATP1A3 that causes Alternating Hemiplegia of Childhood.
To honor this day, the international AHC community has decided to name January 18th the International AHC day. AHC Day is a time to celebrate this first goal we have attained and look ahead to the future work that we can accomplish together because we share a common vision to help those patients who suffer from AHC and their families who care for them.