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HELP US FIND THE LOST AHC CHILDREN

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The AHC International Alliance is working on a documentary about Alternating Hemiplegia of Childhood.

The documentary will review the history of AHC from 1971 when it was first characterized.

There will be interviews with families and professionals that are on the forefront of the disease.

The documentary will be translated in at least 8 languages.

The purpose of the documentary is to find the undiagnosed AHC champions, raise awareness and to expedite research on AHC.

Please go to INDIEGOGO to support the project

Thank you so much

 

Family Meetings

Netherlands

France

Family Meeting

Germany

Family Meeting  01.05. – 04.05.2014

Poland

Family Meeting

Spain

Family Meeting

Japan

Family Meeting

United States

AHCF Family Meeting June 26 – 28 Minneapolis, MN (All families from around the world are invited)

United Kingdom

10th May 2014 at The National Centre for Epilepsy, Chalfont St Peter, Buckinghamshire, 10:00 AM onwards. Professors Sisodiya, Neville and Cross will be giving presentations. 

 

January 18, 2013 International AHC Day!

On January 18, 2012 scientists discovered that there was a mutation in the gene ATP1A3 that causes Alternating Hemiplegia of Childhood.

To honor this day, the international AHC community has decided to name January 18th the International AHC day. AHC Day is a time to celebrate this first goal we have attained and look ahead to the future work that we can accomplish together because we share a common vision to help those patients who suffer from AHC and their families who care for them.