There are 45 families with AHC in China.
I am a father of the AHC child in Peking China. My son is ten months old now. His hemiplegia first occurred when he was five months and was diagnosed with AHC through ATP1A3 gene test, then begin to take Flunarizine everyday.
You can send mail to me if you need some help. There are some information about AHC on the Chinese website.
Families can engage in conversation in our online chat room, which is a user group of the QQ and the group number is 127041684 if you would like to join.